Whitby turned pink and blue last Friday as the whole town joined in a special awareness day which has helped fund-raising top the £10,000 mark.
People were asked to wear the official colours of the Cure Rett charity - in support of Emlyn Coates (7) from Hawsker who has the genetic condition which affects one in around 12,000 girls.
Dozens of businesses took part as well as East Whitby, Emlyn’s school and Body Combat class members at Whitby Leisure Centre with people encouraged to share pictures of themselves on Facebook and Twitter.
Emlyn’s mum Kori, who is co-founder of Cure Rett, whose mascot is Flitty the butterfly, said she was amazed at the support.
She said: “My husband Darren and I are just beyond overwhelmed by the generosity, kindness and support we have had from Whitby and Hawsker.
“They are clearly the best places in the whole world.
“The fund-raising has been going really well, much better than I could ever have expected and it’s exceeded our expectations.”
Money-spinners which have already took place include a Super Hero charity collection and a bag pack at Sainsbury’s.
The final fund-raising event will be Walk A Mile in My Shoes this coming Sunday, where Emlyn, joined by her family and friends will leave her home at Low Laithes Farm at 11am.
From there she will the mile to the Hare and Hounds pub at Hawsker where a family fun day will be held from 12.30pm.
For Emlyn, walking a mile is like climbing Everest and Mrs Coates added: “Emlyn is having surgery next year and we don’t know if this time next year, she will be able to walk a mile or walk across a room. She’s doing this walk as a sort of one off, for most girls with Rett syndrome this isn’t something they do.
“We will be walking at Emlyn’s pace. It will take us a while along the back lanes and Emlyn will always be in the front, everyone will be walking behind her.”
Emlyn has already collected £1,162 in sponsorship for Cure Rett on her Just Giving page and everyone in the community is being invited to join her and show their support.
The fun day at the Hare and Hound is intended as a big thank you to everyone who has supported Emlyn and Cure Rett over the past few months.
There will be a barbecue with Radfords donating the meet and Bothams sponsoring the bread buns, face painting, an English tea stall and Dents events will be supplying a bouncy castle, slip and slide and bucking bronco.
From 5.30pm, four local bands The Curves, Debt Charge, The Drunken Monkeys and By the Sea will perform and there will be charity auction, pink and blue cocktail bar and hog roast supplied by Radfords.
Mrs Coates added: “Emlyn is very excited about it.
“I think Sunday is going to be really special on every level.”
A cake stall and table-top sale will take place tomorrow outside Co-operative Travel in Baxtergate for Cure Rett.
The final fund-raiser for the charity will see 50 people from Whitby and district take part in The Virgin Action London Triathalon on July 27.