Town urged to join ‘Team Whitby’

Emlyn Coates with mum Kori and fundraisers''w131708
Emlyn Coates with mum Kori and fundraisers''w131708
0
Have your say

A mammoth fund-raising effort is under way in Whitby by a kind-hearted team of people to net more than £10,000 for charity, after they were inspired to help by the story of a seven year old Hawsker girl.

Emlyn Coates, who attends East Whitby School, has Rett syndrome, a complex genetic disorder that affects one in around 12,000 girls.

It causes severe physical disability that begins in early childhood.

Emlyn’s mum Kori (39) along with family and friends have organised a host of events over the next few months for Cure Rett, a charity she has co-founded.

Cure Rett helps families with girls and women suffering from the condition and is also funding vital research to find a cure.

The fund-raising for the charity will culminate on 27 July when it is hoped 50 people from the district will compete in the Virgin Active London Triathlon (VALT)

Thirty places have already been snapped-up but Mrs Coates said 20 are still available.

People can form teams to compete in one of the three disciplines - swimming, running or cycling - if they do not feel able to complete the whole triathlon.

Those taking part have already raised £3,000 for Cure Rett and donations are continuing to flood in.

Other charity events planned include a sponsored walk - Walk A Mile in My Shoes - on 14 July in which Emlyn will lead the way from the family’s home at Low Laithes to the Hare and Hounds where a family fun day and evening will be held.

What makes the walk particularly challenging for Emlyn is that she finds walking difficult.

And she will soon undergo an operation which will see her having both her hips and femurs broken to treat hip displacement.

Mum of four Mrs Coates said: “This may be the last chance Emlyn has of walking a mile and there is a possibility, after the operation, she may not walk again as she will be in a brace for six months.

“There is an 80% chance she will not be able to regain the ability to walk.

“Although she can’t talk, she can communicate and has indicated she wants to do the walk and knows how wonderful she is for learning to walk.

“We would love everyone to come and take part and support Emlyn on the day.”

Another big awareness raising campaign will be turning the town pink and blue on 5 July where businesses , schools, organisations and individuals are being urged to wear the charity’s colours - pink and blue in support of Cure Rett and Emlyn.

“We’d like people to take a picture of themselves wearing pink and blue on the day and upload it on Twitter and Facebook.

“We’d like social media to be inundated and would love to see #teamwhitby trending,” added Mrs Coates.

A disco has already taken place at East Whitby School while a bag pack at Sainsbury’s and a car cruise are taking place on 11 May, a super hero charity collection on 26 May and a bad hair day on 13 July.

A bag pack at the Co-op, a spinathon, a rowathon at the Friendship Rowing Club and a coffee morning are also being organised.

Anyone interested in taking part in any of the fund-raising events can ring Kori on (01947) 605315.

To donate to Team Whitby visit https://www.justgiving.com/teams/Teamwhitby and to find out more about Cure Rett log on to www.curerett.org.uk